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The website was formed in June of 2008 to connect with those affected with Congenital Thrombotic Thrombocytopenic Purpura (TTP). Our story is only one of many and we are doing what we can to reach out, get acquainted with and become a resource for others. Ten weeks after our daughter was born she was diagnosed with this very rare disease. After realizing that there are limited resources available to families affected by this disease, we decided to launch this site. We hope you’ll find it useful.


Please use the contact link to share your comments regarding this site; including how it could be improved. Your participation and feedback is very important to the success of this website. Also, please remember that we act simply as a resource connecting various sources of information. Medical questions should always be directed to your physician. Please be cautious with any information received from this website. Although our goal is to publish only credible sources, we make no guarantees and will not be held responsible for any inaccuracies or omissions on this site or on the message board.


Finally, if you or a loved one is affected by Congenital TTP, please contribute to our message board. Our goal is to connect those affected so we may continue to share solutions and be a support resource that may enhance the lives of those needing treatment world-wide.


Thank you.


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